The National Fragile X Foundation's Message Board

PLEASE READ! We are moving our message boards!

NFXFDavid — Fri, 05 Feb 2010 22:26:36 GMT

Greetings to the members of message board,

We are beginning our transition to close these message boards in favor of our newer forums at My.Fragilex.org. This is a message to those who would like to continue discussing Fragile X once these boards have been closed. We encourage all frequenters to join us on the new My.FragileX.org site to keep our Community active and fresh. Your posts have all been useful and enlightening, and we hope to see more of the same at the new forums.

My.FragileX is a Social Networking site which includes a Message Board of its own (there it is named Forums). Discussions have been grouped into 4 topics in order to keep things more organized, and to keep topics in discussion longer. They work similarly to these message boards, and we feel that transition for users of these boards will be seamless.

Our community size as of this time is 1000+ members and growing. This means that you potentially have 1000 other people to converse with on the various subjects surrounding Fragile X. The more people to give suggestions and provide new information, the better.

Anonymity

For those afraid to join because they are afraid of losing their anonymity, we assure you it is possible to use an alias in place of your real name. Others on the site have listed themselves as with names like Carries Mom or David S. You can be as vague as you prefer on the site.

However, we do encourage everyone to put up their own photos, use their real names and provide a few tidbits of information about themselves, as it promotes community and comfortability among the members. We hope that you would also do the same.

Preservation of old conversations

If there are threads on the message boards which are important for you to keep, we will be keeping the message boards up for a longer period of time for read-only. You will not be able to post, but you will still be able to browse the threads for information.

However, be aware that information can change as time passes, and there is no reason that you cant ask those same questions on the forums of My.FragileX. In fact, we hope that you do bring up those same conversations, since many people are not aware of the information you may have shared on these message boards. Introduce people to the same concerns here about Fragile X on the new Forums, and spark new conversations!

Please join us now on the new Forums and make some new friends in the process!

Forum: Old Messages

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 22:25:42 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Miscellaneous and Other

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 22:25:40 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Miscellaneous and Other

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 22:24:40 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Public Policy and Legislative Advocacy

PLEASE READ! We are moving our message boards!

NFXFDavid — Fri, 05 Feb 2010 22:24:01 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: FXTAS: Fragile X-associated Tremor/Ataxia Syndrome

PLEASE READ! We are moving our message boards!

NFXFDavid — Fri, 05 Feb 2010 21:45:03 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Toileting

PLEASE READ! We are moving our message boards!

NFXFDavid — Fri, 05 Feb 2010 21:44:28 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Research

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 21:43:54 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Adult Issues

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 21:41:41 GMT

Greetings to the members of message board,

Our community size as of this time is 700+ members and growing. This means that you potentially have 700 other people to converse with on the various subjects surrounding Fragile X. The more people to give suggestions and provide new information, the better.

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Siblings Only

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 21:41:09 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: FXPOI: Fragile X-associated Primary Ovarian Insufficiency

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 21:40:01 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Mothers Only

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 21:39:34 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Fathers Only

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 21:38:48 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Fragile X Friends

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 21:38:12 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Education

PLEASE READ! We are moving the message boards!

NFXFDavid — Fri, 05 Feb 2010 21:37:20 GMT

Greetings to the members of message board,

Anonymity

Preservation of old conversations

Please join us now on the new Forums and make some new friends in the process!

Forum: Medication