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The National Fragile X Foundation > Forums > Old Messages > Dental visits
 
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shirlissa
Registered: 03/22/06
Posts: 1

Contact using Yahoo

    02/28/08 at 11:42 AM
Reply with quote#1

 
Hello all,
 
Shirley here, writ ting to get some input on mastering the behavioral issues (In my case anxiety) that goes along with those dreadful dentist appts.  My son Dillon has some anxiety the moment he knows he has to go to the dentist.  He doesn't kick scream, or refuse to go, in fact hes good right up to the moment they call his name, with age he now attempts to do more without re straits, like regular check ups, and cleanings, we haven't mastered x-rays yet, he can't keep is tongue still enough and moves the film.  We all love his dentist shes very kind understanding and PATIENT, the kind of dentist that does not want a child to have a terrifying experience, in fact it is me that has to tell her please proceed with procedure, but I too want Dillon to have a pleasant visit.  There used to be medication that dentist would use that made the patient alittle loopy (monitored of course) which Dillon would take to get through a procedure, but due to some dentist abusing it, it was discontinued.  Dillon needs some dental work done, and I'm faced with having to put him under (not my ideal decision)  Does anyone have a child with a  similar issue, and what do you do?  Does anyone have any other suggestions, or just want to share what works for them and their child?  I'd greatly appreciate any feedback.
 
Thanking you in advance, for yr input.
 
Shirley Fidler
patchoulliluv
Registered: 01/19/08
Posts: 12

    03/01/08 at 05:35 AM
Reply with quote#2

2 of my 3 boys with FX have to be put to sleep.  Their gag reflex makes it impossible to even come near their mouth.  I have found it better to tell them about the dental visit when the appt. is VERY near so they don't sweat it.  They will work themselves up until it's time to go and then sometimes it may be impossible to calm them down...so the appt. will have to be rescheduled.
Sometimes my 15 yr old does not even want to have his hair cut. God bless you and your family.  Julie
Becky
Registered: 02/01/06
Posts: 36

    03/12/08 at 04:12 AM
Reply with quote#3

My 7 year old son has to be put under to have any work done.  At the last conference there was a dentist who spoke.  You should be able to look at the conference report to read his presentation.  I e-mailed him when my son Josh was having work and he replied and even gave me his number to give to the doctors/dentist that would be doing everything so they could call him and ask questions.  Not a lot of doc/dentists have ever heard of Fragile X.  Josh can't handle anyone in his face like a dentist has to be and will protest by hitting because he will stop talking.  Our issue was finding a dentist that would take Medicaid and a special needs child that had to be put under.  Then we had to deal with getting signed up because they would only accept new patients every few months and it was a first come first serve up to so many.  But, we have a great dentist now.  There are a couple of things I would change though the next time he has to go under.  I will opt not to give him the "sleepy" medicine because I felt it affected in ability to come out of the anesthesia and I would have them take the IV out before he woke up.  Josh stayed confused for about 1 1/2 hours after waking up and that was not a good experience.  The poor baby was hitting, trying to bite, get up, cry and then couldn't even hold himself up.  It was hard.  My dad was with me since my husband with home with sick kids.  He couldn't really help me because of his physical limitations.  But, it will be a couple years before he goes under again.  I am the one that has to wiggle baby teeth and the wrap him in a blanket to pull them out!  I try to make a game of it and sing a made up song.  Then, we put the tooth under the pillow and look for the tooth fairy.  She comes early since he would not really get the concept of the next morning. 

barbara
Registered: 03/15/08
Posts: 1

    03/16/08 at 12:22 AM
Reply with quote#4

My son is 24 now but we had real fun and games at dentists, hairdressers, doctors, hospitals, etc. etc. but it does improve, and when he was 19 I asked him  ''James, what are we going to do at the dentist today? I don`t want you to have to have yet another operation just to see your teeth '' and James said as if I was really thick,  ''Mum, why don`t you count! Then I can open my mouth and keep still in Xray!''  It was so simple but I told the dentist lady and it works! We tell him what we will count to, e.g . 7, and he keeps still / opens his mouth for exactly that amount of time, sometimes he sets the amount of time and says 3 or 4, so we work with that counting slowly, he just needs to know it won`t last for ever I guess, I`m not sure if it will work with a younger son, but try and adapt it to your own method.
God bless and I hope it`s some help, James has had about 6 operations since babyhood, 3 were for eyes, twice for dental and once for tonsils which was probably the worst as he took some fluid into his lungs as they gave him Pamol before the op and he was sick during op as the Pamol was on an empty stomach, not a good idea!


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B Shelley
twallwork
Registered: 08/10/06
Posts: 101

    03/16/08 at 03:39 AM
Reply with quote#5

Barbara...that makes so much sense!!!!!!!!!!   That explains why the counting works with my kids....I count, but I thought they were somewhat fearing a consquence at the end of the counting and that's why they followed through......but there is no consequence, just a guided follow-through....never has been more than that....they just know that they are expected to follow through independently at some point before I say five!!!  Huh!!!!    And I know about the kids needing to understand that concept of time, because I've heard stories, for example, of one child who would bang the table and when asked to stop, would stop, but start again....until one day his grandmother was so exasperated she said, please don't bang the table ever again....and the boy never did.....and it dawned on me that I needed to qualify time with all my instructions to my oldest daughter in this same way....it's bit me in the butt a couple of times, as the word "never" usually does....but generally it works......so thank you for helping me put 2 and 2 together, lol .....now I can use my counting in a much more useful way and with more situations.....

Gayle
Registered: 01/09/06
Posts: 101

    03/16/08 at 11:58 AM
Reply with quote#6

It just goes to show how smart these kids really are.    When we fainally get to the root of these "unreasonable" behaviors, it's amazing the logic they use!  The best stratagies that work with my son are the ones he came up with after my exasperated "What are we going to do"s.

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