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The National Fragile X Foundation > Forums > Social Skills and Socialization > No interest in Socializing
 
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PenguinT
Registered: 03/08/06
Posts: 4

    06/11/08 at 08:49 AM
Reply with quote#1

Has anyone experienced their child (regardless of age) having no interest in social situations or socializing? 

My 16 year old daughter really has no interest in social situations of any kind.  She expresses interest in doing things, for example the movies, but when it comes time to go, she backs out.  I always say, she talks a good talk, but lacks the follow through.

We have gotten her involved with special olympics, but she doesn't make any friends.  She enjoys the sport, but to my knowledge has never even said hi to her teammates.  I have had her teammates ask me why she doesn't talk, and I just tell them she is REALLY-REALLY shy, it takes the pressure off of her I think.
In school, she has a couple of classmates that she seems to like, but doesn't want to have them over, nor does she want to go to their house.  She is even like this with family.  When we go to a relatives house, she sits alone.  She doesn't take the first step to engage her cousins (her age or younger even), nor does she continue the step when her cousins engage her. 

Should I continue to keep her involved with social situations, or should I back off for a while and let her decide when she wants to socialize?


slwnky51
Registered: 06/13/08
Posts: 1

    06/15/08 at 06:33 AM
Reply with quote#2

It could be selective mutisum

weberlj
Registered: 10/31/07
Posts: 15

    06/18/08 at 06:18 AM
Reply with quote#3

You might check out this information on our website, particularly the "verbalization" section, and then talk to your daughter's doctor:
http://www.fragilex.org/html/serotonin.htm
Jayne Dixon Weber
Coordinator of Support Services
National Fragile X Foundation
PO Box 190488
San Francisco, CA 94119-0488
USA
Tel: 800-688-8765 
Fax: 925-938-9315
Email: Treatment@FragileX.org
Internet: http://www.FragileX.org
beauty7
Registered: 05/01/06
Posts: 62

    07/03/08 at 09:53 AM
Reply with quote#4

I just wanted to let you know that I too have been in  your daughter's shoes when I was younger-- from the age of 13-17 that I had no friends in school and did have acquaint es. I also had zero self-confidence in myself when I was 13 years old.
 Even to this day that I have been involved in Special Olympics in Bozeman,Mt for 13 years going on 14 years this fall. I am also involved in public speaking with Montana Special Olympics and also part of the athlete input council in Bozeman,Mt along with my other teammate. I also work 2 volunteer jobs in Bozeman,Mt -- walking dogs at a local animal shelter in Bozeman,Mt  I would like to be your daughter's buddy through e-mail and here are my two e-mail address: 1) amydebern97@hotmail.com , 2) aimesmountain@gmail.com. I have gotten to know many people and meet new people through Montana Special Olympics and also through many other non-profit groups. I would even suggest that in Special Olympics that the teammates get to know her as a person and to invite her to do things on the weekends. I hope this helps.

PenguinT
Registered: 03/08/06
Posts: 4

    09/23/08 at 09:56 AM
Reply with quote#5

Thank you all for responding to my comment regarding my daughter's lack of interest in socializing. 
I hadn't thought about selective mutism, but will definately talk to her doctor about it.  Reading the informtaion available on this website has helped too.

We are planning on taking her also to a psychologist also so hopefully that will help in combination with special olympics, possible medication, and a whole lot of patience!
Thanks
T
4sweetkids
Registered: 04/23/08
Posts: 16

    09/24/08 at 04:31 PM
Reply with quote#6

I am a carrier, and I don't know how much my anxiety has to do with that.  I always just thought I was shy.  I was in a situation where I was forced to be social, but I did it because I so desperately wanted to be a part of a sorority.  I had always wanted to be popular, but I was really too afraid to talk with too many people from middle school through high school. 

I know that isn't the same thing, but I brought it up to say that when she is motivated, her social skills might improve.

Another thing for me is having the opportunity to regroup.  I can be social for a long period of time (hours), but when I can go home and not even answer the phone after those hours, it makes it easier to go out and do it again.

twobytwo
Registered: 10/30/08
Posts: 2

    04/10/09 at 03:09 PM
Reply with quote#7

I have a young adult daughter who is 23 years old she is was diagnoised with Fraigle X when she was younger. I was adopted and didnot know at the time of her birth,that I was a carrier for fraigle x and too was effected by it. She is very shy and doesnot like to socialize ..unless she has an interest in the conversation. She has a difficult time finding the right words to put in a sentence. also making friends.

Gayle
Registered: 01/09/06
Posts: 101

    05/18/09 at 03:12 PM
Reply with quote#8

I can not say enough about the BEST BUDDIES program.  It is a nationwide program that pairs typically developing kids with challenged kids for the purpose of friendship.  In one short year my 16 yr old FX son has gone from only wanting to watch TV to wanting to go places with a group.
He has been assigned two lovely young ladies who have gone out of their way to pull him out of his shell.  He will now eat outside with friends instead of hiding in the classroom.  They went with him to Disneyland, the zoo and bowling.  They come to the house just to hang out.  It took many weeks of just sitting by him before he would cooperate but they worked a miracle in my eyes. To hear him say  "See you later, Mom, I'm going with my friends" are some of the sweetest words I've ever heard.

Bestbuddies.org

Find a chapter near you or help set one up. 

Gayle
Registered: 01/09/06
Posts: 101

    05/19/09 at 01:05 PM
Reply with quote#9

Correction, It's INTERNATIONAL not just nationwide.
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